If a Tree Falls

  Table of Contents

  OTHER BOOKS IN THE REUBEN/RIFKIN SERIES

  Title Page

  Dedication

  Prologue

  California, July 2000

  California, August 2000

  California, September 2000

  California, October 2000

  California, October 2000

  California, November 2000

  California, November 2000

  Massachusetts, May 2001

  Massachusetts, December 2002

  Massachusetts, September 2003

  Massachusetts, October 2003

  Massachusetts, March 2004

  Massachusetts, August 2004

  Massachusetts, September 2004

  Massachusetts, February 2005

  Massachusetts, April 2005

  Massachusetts, December 2006

  Massachusetts, August 2007

  Massachusetts, September 2007

  Acknowledgements

  Copyright Page

  OTHER BOOKS IN THE REUBEN/RIFKIN SERIES

  Arguing with the Storm: Stories by Yiddish Women Writers

  edited by Rhea Tregbov

  Dearest Anne: A Tale of Impossible Love

  by Judith Katzir

  Dream Homes: From Cairo to Katrina, an Exile’s Journey

  by Joyce Zonana

  Shalom India Housing Society

  by Esther David

  The Reuben/Rifkin Jewish Women Writers Series A joint project of the Hadassah-Brandeis Institute and the Feminist Press

  Series editors: Elaine Reuben, Shulamit Reinharz, Gloria Jacobs

  The Reuben/Rifkin Jewish Women Writers Series, established in 2006 by Elaine Reuben, honors her parents, Albert G. and Sara I. Reuben. It remembers her grandparents, Susie Green and Harry Reuben, Bessie Goldberg and David Rifkin, known to their parents by Yiddish names, and recalls family on several continents, many of whose names and particular stories are now lost. Literary works in this series, embodying and connecting varieties of Jewish experiences, will speak for them, as well, in the years to come.

  Founded in 1997, the Hadassah-Brandeis Institute (HBI), whose generous grants also sponsor this series, develops fresh ways of thinking about Jews and gender worldwide by producing and promoting scholarly research and artistic projects. Brandeis professors Shulamit Reinharz and Sylvia Barack Fishman are the founding director and codirector, respectively, of HBI.

  For Bill,

  Sophia, and Juliet

  In this book I follow the convention whereby audiological deafness is spelled with a lowercase “d,” to distinguish it from Deafness with an uppercase “D,” a reference to the culture and community of those with fluency in sign language.

  Prologue

  FOR A LONG TIME, I thought this story began with my daughter’s birth, or just a few hours later, when we learned that she might not hear. But the question of not hearing began long before her, before me.

  A string, fragile and thin, a cilia strand, a helix, twists its way back in time to Brooklyn, New York, and before that, to tiny shtetls, specks on the maps of Eastern Europe. For generations, the line has been frayed and tattered.

  But I am told that at one time, a cord gently linked our wrists so that we would wake together. Our hands clasped and our arms twined, thick as a seaman’s rope.

  And we could hear.

  And we could listen.

  California, July 2000

  I WAS CALM WITH OUR NEWBORN BABY GIRL nestled in the crook of my arm. I hadn’t expected to be calm in new motherhood. Yet, here I was with Sophia. Soaked and happy. Anchored by her gaze.

  We had arrived at the hospital to find a nursing strike in full force. Our doctor, who’d assured us that he had no plans to travel in July, was away on vacation. We were settled into a labor room by a strikebreaker scanning the room for sterile gloves and fetal heart-rate monitors.

  Bill got hold of a birthing ball and a cup of ice chips, and sought to soothe me with reminiscences of the day we conceived. It was Halloween morning and we had been trying to conceive for fourteen months. Bill proclaimed to me, with prophetic sureness: “YOU are getting pregnant today.” We had a houseguest, but Bill just handed him the dog leash and a shopping list of assorted candy and ushered him out the door.

  Now, nine months later, here was our girl, swaddled and warm, with wispy brown hair and huge slate eyes. Sophia.

  Shoulder to shoulder with Bill in our narrow hospital bed, I lost myself in the chub of Sophia’s feet and the translucent pink of her toenails as she dozed off to sleep. I hardly noticed the beeping monitors, the flurry and rush of nurses, the ring ring of the telephone. I was in a bubble, impervious to our surroundings. I had experienced this insulation only once before in my lifetime, when Bill and I stood together beneath our wedding chuppah, alight in a September’s sunset six years earlier. My attention fixed only on him—his peacock blue eyes flickering in the candlelight, his sure voice, his vows, riding softly on the night air—until the shatter of glass brought forth the cheers of family and friends, Bill’s lips to mine.

  I was jarred out of our new magic when a hospital volunteer with a red and white polka-dotted hat wheeled in a computer cart and prepared to run the newborn hearing test. Unapologetically, she swabbed Sophia’s forehead and applied electrodes in four places. Sophia stirred in sleep, but did not wake. Stepping gingerly around the computer wires, the volunteer came to stand at the keyboard, pushing keys and then waiting, staring at the monitor. Nurses had already been in and out for heel sticks, eye drops, immunizations, a vitamin K shot. I continued to gaze at Sophia. She was all olive, rose, and brilliant slate gray, her features still mushy like a newborn pup’s.

  I glanced over at Bill to see if he noticed the way Sophia’s lips pouted. I was surprised to find his face sallow. He was up, questioning the volunteer about the numbers that appeared on the screen. His stare alternated between Sophia and the computer monitor.

  “What are the typical scores for this test?” Bill asked.

  “The numbers are usually in the hundreds,” the volunteer mumbled almost inaudibly.

  I sat up and gaped at the tiny white numbers, dwarfed by the hulking black monitor: 4 . . . 7 . . . 3.

  “Soph, you’re not exactly setting the world on fire.” Bill’s voice was thin.

  “Bill, what’s going on?”

  “Come on, Sophia.”

  The volunteer shifted her weight, staring at us awkwardly. Then she walked over to Sophia, removed the electrodes, and gently wiped the goo from Sophia’s hairline. She stuffed the tangle of cords on a low tray, switched off the computer screen, and guided the computer cart, backward, out of the room.

  An audiologist came in five minutes later. “I’ve been notified that Sophia didn’t pass the hearing screen, but remember, your baby has been ‘underwater’ for nine months,” she said in a reassuring voice. She went on to explain that residual amniotic fluid or a bacterial infection may have caused Sophia to fail the screening test. Statistics were in our favor: twenty-six of thirty babies who fail the initial test pass it two weeks later. Only a small number turn out to be hard of hearing or deaf.

  I sat, silent, with Sophia curled in my lap.

  The bright sunlight beamed through the thick hospital window. I had just finished my doctorate in philosophy, but lacked the philosophical tools to deal with this. My baby could be hard of hearing or deaf? How was this possible? Like all expectant mothers, I had harbored fears for my baby, choking down prenatal vitamins the size of horse pills and eating platefuls of kale to ward off the numerous maladies catalogued in the pregnancy books. But deafness? I’d had no reason to consider it. Now, despairing passages flashed through my head: Aristotle’s notorious claim that the deaf, incapable of s
peech, are incapable of reason. Immanuel Kant’s view that the “Dumb” (the mute) can never be full-fledged persons. The categorization, in Jewish law, of deaf mutes as forever childlike. I knew these conceptions were outdated, from another, less generous time, but they eroded my spirit anyway, and dreams I didn’t realize I carried—dreams full of a child’s chatter and song—began to wither deep inside.

  The audiologist broke into my pained muddle with a pragmatism that was strangely comforting. “ I can’t have any idea what this must be like for you. I don’t have a baby, never mind a baby that might be deaf.” She went on to take down our history, asking if there was anyone with hearing problems in our families.

  My mother. My mother had substantial hearing loss. She had worn hearing aids all of my life. They whistled and never seemed to work very well. But so far as I knew, my mother wasn’t born with her hearing problem—she lost her hearing after a series of mastoid infections and surgeries. It wasn’t genetic. I told the audiologist what I knew of my mother’s history.

  After the audiologist left, I dialed my parents in Connecticut. With Sophia in my lap, the phone cord bunched and tangled like curly hair just above her nearly bald head.

  “Dad, Sophia failed the newborn hearing screening.”

  “What?”

  “She didn’t pass the hearing test. The audiologist said it might be due to fluid or a bacterial infection. They’re going to test her again later. But ...”

  “Jenny, I’m sure it will clear up. Listen, we’re flying out there in a few hours. We’ll see you this afternoon.”

  “But what about mom’s hearing loss? Is there any chance it’s genetic?”

  “No, no. Don’t push the panic button. I’m sure it will all clear up.”

  Hours later, the same volunteer wheeled in the computer and re-tested Sophia. There again were those tiny white numbers—too low, much too low. Sophia lay asleep, unperturbed as Bill and I stood powerless: we couldn’t will her to hear the sounds being piped into her brain.

  My parents arrived in the early evening, gift bags filled with baby blankets and onesies rustling in their arms. They settled into our crowded hospital room and took turns cradling Sophia. The place teemed with people—nurses and doctors, lactation consultants, various friends wanting to meet Sophia, a “welcome wagon” lady from the local synagogue with a challah in tow. Through the clamor, I felt a burgeoning grief rise inside me. It clashed with my joy and wonder at Sophia—how she opened her tiny mouth like a baby bird, how she stretched all twenty-one inches of herself, from the tips of her fingers to the tips of her toes, as she yawned. Against my own groundless hopes, I recoiled from every attempt at reassurance. “She probably still has fluid in her ears,” my parents kept saying. I could hardly look at Bill.

  Later that night, my father walked to a nearby market to get us provisions: my favorite black currant tea, rice pudding, bagels and cream cheese, a pint of fresh blueberries. Then my parents left. They would visit the next day, before their flight back. We were alone again. Bill and I nestled Sophia, capped and swaddled, into the bed. I stacked newborn diapers into the bureau drawer, ate a spoonful of rice pudding, then huddled next to Bill on the remaining swath of bed, burying my face in his shoulder. The prospect of middle-of-the-night feedings was a relief to me. I knew I wouldn’t be sleeping tonight.

  The following day, the audiologist came to schedule Sophia for further tests. She tried to reassure us again with statistics. I clutched the small, striped hospital blanket that Sophia was swaddled in at birth. Nurses bustled about, preparing us for discharge. We were handed a form to rate our comfort level with the various tasks of baby care: nursing, diapering, bathing. We were novices at all of it, unsure even of how to rate ourselves. I stood paralyzed beside the baby bassinet, wondering if it would be all right if we took the swaddle blanket with us. Our discharge papers contained the order to return to the hospital in two weeks for audiological follow-up.

  Sophia’s newborn diaper dangled off her tiny, silken body as I arranged her in her new infant car seat for the drive home. Upon our arrival, our German Shepherd, Lucca, barked out a welcome. I felt Sophia startle.

  Inside, I settled Sophia in her crib, newly padded and bumpered. Then I bustled about, preparing the nursery, and myself, for the continuous feeding and diapering cycles to come. With every sound—the closing of a drawer, the creak of a floorboard—my eyes darted to Sophia.

  In the wee hours—our first night home with Sophia—I began to tie a string around the crib’s maple post, like I had seen my grandmother do for good luck. As I looped the thin red cord into a flouncy bow, I heard the clicking and beeping of our fax machine. I entered my study to see pages falling in curls off the paper tray, brushing against my feet. I picked up the cover sheet, and in my father’s distinctive, nearly illegible handwriting, read: To Jenny, Love Dad. I picked up the next page and saw that it was a family tree, scrawled in my father’s hand. He must have added Sophia to it!

  I gathered up the various pages and I saw that some of the names of my relatives were marked with an asterisk: Nellie1, Bayla1, Bertha1, Sam1, Moe1, Judith1. I wondered what the asterisks might mean. Could they connote relatives who died in the Holocaust? Other names on the chart had a tiny OK written next to them.

  I rifled through the pages. At the very bottom of the last page:

  My t-shirt dampened with cold sweat. I shivered. I couldn’t seem to keep my hands, or the uncurled fax pages, steady. Sophia was crying—something I understood more from the cramping of my uterus and the letdown of my milk than from my sense of hearing.

  I dialed my father—it was 7 a.m. in Connecticut. I could barely get any words out. He tried to dispel my worries. Again, he raised the audiologist’s point that Sophia may have fluid in her ears or a bacterial infection—something that will resolve quickly. “But the audiologist hasn’t seen our family chart,” I sputtered bitterly. I knew my father wanted to protect me, but was he in utter denial?

  When I showed Bill the chart, he hugged me tight.

  “It’s all right, Jenny. It’s going to be all right.”

  “But how?” I countered. “There is deafness all around us.”

  There was my mother’s hearing loss—which supposedly developed from infections in infancy, though now I couldn’t help but wonder if it was actually a genetic, progressive hearing loss. And there was the documented deafness on my father’s side of the family, too. Bill wasn’t aware of any deafness in his family history. But we’d come to learn from a hasty Internet search that Ashkenazi Jews—Bill and I were both of Ashkenazi descent—have a heightened risk of carrying recessive gene mutations for deafness. If Sophia had a hearing loss caused by recessive gene mutations, she’d have inherited one each from both of us.

  For the next two weeks, I put Sophia down only to devise, run, and then discount homespun hearing tests. I’d settle her on the bed, stand behind her, and clap my hands; then I’d question whether the sudden gust of wind created by the clap could explain her eye blink as well as the clapping sound itself. Or I’d rig up a towel (to shield the wind gusts) only to watch my clapping coincide with the billowing out of a stray thread that tickled her thigh. Or I’d wrap myself with a thick blanket (to dull the scent of my breast milk) while I cut the frayed edges of the re-rigged towel (to prevent thigh tickling). Then I’d clap my hands and hear Lucca bark at the same moment, perhaps in protest to it all. Eventually, I’d take Sophia back into my arms, sink into the bed, and try to synchronize my breathing with her gentle, sleeping breaths.

  The morning of the follow-up appointment, Bill and I packed the diaper bag, settled Sophia into her car seat, and drove to the hospital. The jingle of bicycle bells. The ditty of an ice cream truck. A car honk from behind. We didn’t speak. Bill looked ahead, driving. I stared out the window at the trees, a blur of gnarled greens and browns.

  In a cramped testing room, we perched awkwardly on high stools and peered over the audiologist’s shoulder at the computer monitor. Sophia l
ay asleep on a blanketed examination table, electrodes gooed to her head. Indecipherable sound waves, like peaking mountain ranges, appeared as sketches on the screen, then disappeared.

  Nearly an hour passed before the audiologist turned off the computer and led us to a cluster of chairs in the corner of her office. Sophia woke with a start, her arms flailing, then fell back asleep on the table. A fluorescent light hummed overhead. The audiologist chose a huge yellow binder from the bookshelf, then came and sat across from us in a chair, the binder on her lap.

  “Sophia has a severe sensorineural hearing loss,” she began. She held up a page she had printed from her computer. It was a piece of graph paper spattered with little sound drawings: a barking dog, a ringing telephone, an airplane, a piano. There was a jumble of letters—the sounds of speech—clustered inside a banana-shaped outline. A sloping line, another mountain sketch, overlaid the drawings. The audiologist explained that the sloping line was Sophia’s audiogram; it showed what range of frequencies and decibels Sophia could hear. Almost nothing in the “speech banana.”

  “So she can’t hear us talk?” I asked hoarsely.

  “No. She may hear some speech sounds—the wide open vowel sounds—but not much else.”

  The audiologist told us that the typical working ear has over fifteen thousand tiny hair cells that convert sound waves into neural signals. In Sophia’s case, it was likely that a majority of these hair cells were broken or bent or missing. As she spoke, she handed me the binder. It was thick with information about deafness.

  The audiologist enumerated possible causes of Sophia’s hearing loss, beginning with recessive genes from Bill and me. I could see that I was shaking before I felt it. I darted to the examination table, scooped up Sophia, and rocked her back and forth, back and forth. She was so tiny, just two weeks old, her hands still transparent. What would life be like for her? How were we going to communicate? The audiologist spoke about hearing aids, about sign language, about the cultural divide between Deaf and Oral schools. She was saying that deafness was sometimes syndromic, and that tests would need to be ordered to rule out eye, kidney, and heart disorders. We should schedule a genetics consult, she added as she looked over my family chart. Bill came to stand next to me, and steadied my quaking hand.